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Researchers from the University of Liverpool’s Institute of Translational Medicine, in collaboration with the Universities of Edinburgh and Oxford, are launching a national survey to further understanding of a common gynaecological condition called endometriosis.
Endometriosis is a long-term condition where tissue that behaves like the lining of the womb (the endometrium) is found outside the womb. These are called endometriotic lesions and they can be found in many different areas of the body. This condition affects around two million women in the UK.
Symptoms associated with endometriosis can vary significantly from person-to-person, with many women experiencing pelvic pain, painful periods, pain with intercourse and difficulties in getting pregnant.
Currently, the causes of endometriosis aren’t fully known and diagnosis requires invasive surgery. None of the available medical and surgical treatments, however, can cure the condition.
Clinical Senior Lecturer and Consultant Gynaecology Surgeon, Dr Dharani Hapangama, said: “The aim of the survey is to provide us with information on what people think are the most important areas to focus our research on.
“We want to hear from the women suffering with endometriosis; their partners; families; friends and loved ones; healthcare providers/professionals; and employers to understand what are the most important unanswered questions about this condition. With this information, we can prioritise the top 10 questions, and then focus our research to find answers to them.”
The survey is to be launched on Wednesday, 9 March 2016 and can be found here. The survey will remain live until 31 May, 2016.
Dr Hapangama added: “Endometriosis can be a difficult condition to deal with, both physically and emotionally. Charities such as endometriosis.org, Endometriosis SHE Trust UK and Endometriosis UK can offer advice and support to help you cope.”
The survey is being hosted by The James Lind Alliance (JLA).
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